The end of Reception Class and into scary Year 1!

Well Ché has made it through Reception and is on his way to Year 1 in September. He has come so far, it is really amazing and inspiring to see what he has achieved even though he had 6 weeks off  after his open heart surgery. He loves the computer in school, he is such a visual learner and knows the full sequence of how to get from first 'click' to last. He loves the interactive white board...I would love one at home!!! Luckily for him and me his lovely support teacher is staying with him again this year so onwards and upwards .

The heart of the matter....

Well the day has come and we have been told Ché will need to have open heart surgery to patch the hole in his heart as the heart is enlarging due to the pressure of blood flowing through the tiny hole. It will be sometime in February.Needless to say we are quite anxious about the whole thing but we know it's a means to an end and the procedure itself is straight forward as much as it can be.The idea of my perfect little man having to have his chest opened is quite overwhelming but God is good and will look after him.

Ché

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Irish Dancing in Hemel Hempstead

.......up early, curl the hair, pack the dress, make the lunch box and off we go to the Irish dancing Feis....it is May and it might as well be October, freezing cold in a huge gym watching the talented Tara-Mia do her thang! Today was not a good day as I am now in bed with the tiredness brought on by mild hypothermia, thank God the kids got to keep warm by jumping up and down practising....a trophy and two medals made it all bearable and Tara-Mia came away quite pleased with herself.....well done baby....only problem now is the costume is looking very tight and small and the thoughts of handing out £350 again for a new one is not good.....

Ché two weeks into school........

.....and here we are two weeks into school already and the little man is thriving. Ché is talking non-stop and  all of a sudden the broken words and sentences are all flowing into one, magical. Tara-Mia is loving the big sister part bringing him into his classroom each morning and popping over to the playground to catch a glimpse of him through the fence,so cute. Ché is a bit of a celebrity at the moment as he is the only child with Down Syndrome at the school and because everyone has known him since he was born and seeing him everyday when we would pick his sister up they all feel they know him. Ché has had a temperature two days running which is all part and parcel of mixing with a lot more kids and picking up the bugs.The feeling is good at the school at the moment .....