The heart of the matter....

Well the day has come and we have been told Ché will need to have open heart surgery to patch the hole in his heart as the heart is enlarging due to the pressure of blood flowing through the tiny hole. It will be sometime in February.Needless to say we are quite anxious about the whole thing but we know it's a means to an end and the procedure itself is straight forward as much as it can be.The idea of my perfect little man having to have his chest opened is quite overwhelming but God is good and will look after him.

Ché

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Irish Dancing in Hemel Hempstead

.......up early, curl the hair, pack the dress, make the lunch box and off we go to the Irish dancing Feis....it is May and it might as well be October, freezing cold in a huge gym watching the talented Tara-Mia do her thang! Today was not a good day as I am now in bed with the tiredness brought on by mild hypothermia, thank God the kids got to keep warm by jumping up and down practising....a trophy and two medals made it all bearable and Tara-Mia came away quite pleased with herself.....well done baby....only problem now is the costume is looking very tight and small and the thoughts of handing out £350 again for a new one is not good.....

Ché two weeks into school........

.....and here we are two weeks into school already and the little man is thriving. Ché is talking non-stop and  all of a sudden the broken words and sentences are all flowing into one, magical. Tara-Mia is loving the big sister part bringing him into his classroom each morning and popping over to the playground to catch a glimpse of him through the fence,so cute. Ché is a bit of a celebrity at the moment as he is the only child with Down Syndrome at the school and because everyone has known him since he was born and seeing him everyday when we would pick his sister up they all feel they know him. Ché has had a temperature two days running which is all part and parcel of mixing with a lot more kids and picking up the bugs.The feeling is good at the school at the moment .....

Life is precious

It is with a heavy heart I write this as I think of the very wonderful Gerry Ryan , RTE radio reporter presenter for the last twenty years, who passed away on Friday 30th of May suddenly. He was always there in the mornings with his devilish sense of humour, never afraid to say what was on his mind, loved by all the women of Ireland whom he helped through every aspect of life through his microphone.A one off, the mould was broken when Gerry was born and it is a very dark week for all of us whose life he touched through the radio and his grieving family, A light has gone out at RTE and will never be replaced....he leaves his five children a legacy as the most adored man in Ireland, especially in Dublin. I wonder what he would think of it all, condolences books being signed by thousands. God bless you and may you have the top broadcasting spot up there.....I listened to his last show on the podcast and it was eerie to think he was dead the next day....gone but never forgotten. x

Ché Andrew Tinsley age 5 - First day at School

Well the day finally arrived, Ché started school today and what a handsome little dude he was. All the good work with his TA since pre-school, getting him prepared for the big move and in he walked liked he was king of the castle with not a bother. He was the first In through the door, hung his bag on the hook, kissed me and said, 'goodbye mammy' and off he trot into the classroom hand in hand with the teacher.That was that, the big day we had all worked so hard for, Ché joining mainstream school. Picked up the little man after three hours and he was absolutely thrilled with himself. Had a great day and hopefully it will continue.

and so it begins.....